Tomorrow morning he will see an Occupational Therapist who will do oral stimulation and possibly some tastes to see how he handles those things. This will determine if he will get to start some more intensive therapy with food and thickened liquids. We might begin teaching him how to eat!!!! Please keep him (and me) in your prayers tomorrow. There is a chance that when we start putting things in his mouth that he could aspirate and possibly get sick. Please pray that this does not happen and that he is miraculously ready to eat (Hey, He said ask, and it shall be given) :) I know this can be a slow process, therapy and learning to eat...so I will definitely be asking for an extra dose of patience.
Hayden is doing really good though. He's up to a whopping 12 lbs .4 oz!! He's pulling up from laying on his back (all by himself) and his head control is improving tremendously. He's smiling and laughing and 'talking' to us. He's not on high calorie formula anymore (thanks to my executive decision) and so he's able to go #2 easier, which helps with the puking, and he's peeing more frequently too. (In case you needed to know that). He has so much more energy now that he's not full as a tick all the time. It's a blessing to see him smile after all he's been through. He's definitely one tough kiddo.
Oh, and as far as the possible funduplication re-do, I think he might be ok for now since we have the reflux pretty much under control with meds. (He takes prevacid and zantac). It's still our hope that he can start eating a little at a time and that this would help control the reflux too.
Hope everyone is well. Blessings to you and thank you for your prayers.
~Rachel
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